"Ballads of the Agonized Souls" (by Noor Alam)

"the doctor said two bags of blood is needed with 20 desferal injections each month. one bag of blood costs about 500 taka and also difficult to find. the desferal costs 250 taka. moreover, trips from chandpur to dhaka costs a lot of money. we are poor farmers, how will we get the money?" khuki, khorshedâ€™s mother khorshed alam, age 9 affected by beta major thalassaemia chandpur

Tue, 14 Jun 2011 15:23:15 +0000

"the doctor said two bags of blood is needed with 20 desferal injections each month. one bag of blood costs about 500 taka and also difficult to find. the desferal costs 250 taka. moreover, trips from chandpur to dhaka costs a lot of money. we are poor farmers, how will we get the money?" khuki, khorshedâ€™s mother khorshed alam, age 9 affected by beta major thalassaemia chandpur
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"when i brought shabjal to dhaka from manikganj for his treatment, he didn't want to let go of my hands because he was afraid of getting lost. my sweetheart is lost forever... now wherever i go i carry this picture. i feel he is with me." shahida begum, shabjal's mother shabjal died of thalassaemia on shraban 7, 1414 at the age of 14

Tue, 14 Jun 2011 15:24:46 +0000

"when i brought shabjal to dhaka from manikganj for his treatment, he didn't want to let go of my hands because he was afraid of getting lost. my sweetheart is lost forever... now wherever i go i carry this picture. i feel he is with me." shahida begum, shabjal's mother shabjal died of thalassaemia on shraban 7, 1414 at the age of 14
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"sometimes i get so sick that i have to stay in bed and can't go to school. i feel very depressed during those times." mehedi, age 12 affected by e-beta thalassaemia uttara, dhaka

Tue, 14 Jun 2011 15:27:58 +0000

"sometimes i get so sick that i have to stay in bed and can't go to school. i feel very depressed during those times." mehedi, age 12 affected by e-beta thalassaemia uttara, dhaka
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"this is an artwork by my daughter diba. she was very beautiful. but later her appearance had changed due to illness." nirmal kumar das, diba's father debasree das diba died of thalassaemia on november 14, 2004 at the age of 18

Tue, 14 Jun 2011 15:29:30 +0000

"this is an artwork by my daughter diba. she was very beautiful. but later her appearance had changed due to illness." nirmal kumar das, diba's father debasree das diba died of thalassaemia on november 14, 2004 at the age of 18
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"what didn't i do for my lovely daughter to be cured! i tried with several specialist doctors. even took refuge to pir-fakirs. but i know this disease is not to be cured. at last i left her fate on the hands of allah." anjuman ara khan, anika's mother anika, age 9 affected by beta major thalassaemia mohammadpur, dhaka

Tue, 14 Jun 2011 15:30:42 +0000

"what didn't i do for my lovely daughter to be cured! i tried with several specialist doctors. even took refuge to pir-fakirs. but i know this disease is not to be cured. at last i left her fate on the hands of allah." anjuman ara khan, anika's mother anika, age 9 affected by beta major thalassaemia mohammadpur, dhaka
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"jasmine had always been very serious about her education. she was doing her graduation in management in eden college. she was preparing for her 2nd year final examinations, but time didn't allow her. her books are still there as they were. don't feel like moving them." akhteruzzaman waresi, jasmine's father jasmine akter waresi died of thalassaemia on august 22, 2008 at the age of 22

Thu, 16 Jun 2011 07:34:53 +0000

"jasmine had always been very serious about her education. she was doing her graduation in management in eden college. she was preparing for her 2nd year final examinations, but time didn't allow her. her books are still there as they were. don't feel like moving them." akhteruzzaman waresi, jasmine's father jasmine akter waresi died of thalassaemia on august 22, 2008 at the age of 22
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"ronnie was very meritorious. she continued her study even after her illness worsened. she dreamt of being a doctor. even took steps to fulfill her dream. unfortunately, she couldn't finish her mission." abdur rashid howlader, ronnie's father tania sultana ronnie died of thalassaemia on july 29, 2006 at the age of 21

Thu, 16 Jun 2011 07:34:53 +0000

"ronnie was very meritorious. she continued her study even after her illness worsened. she dreamt of being a doctor. even took steps to fulfill her dream. unfortunately, she couldn't finish her mission." abdur rashid howlader, ronnie's father tania sultana ronnie died of thalassaemia on july 29, 2006 at the age of 21
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"my sister used to take singing lessons and i took on tabla. we used to practice together every morning. now the instruments are gathering dust." touhiduzzaman, rana's younger brother saiyeda ferdousi akter rana died of thalassaemia on july 5, 1993 at the age of 15

Thu, 16 Jun 2011 07:34:53 +0000

"my sister used to take singing lessons and i took on tabla. we used to practice together every morning. now the instruments are gathering dust." touhiduzzaman, rana's younger brother saiyeda ferdousi akter rana died of thalassaemia on july 5, 1993 at the age of 15
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"imon has a swelled belly along with acute pain. the doctor said if he had he had the spleen operation, he could get well. the operation will take 20,000 taka. imon's father has died. how is it possible for me to collect the money?" imon's mother imon, age 14 affected by e-beta thalassaemia bikrampur

Thu, 16 Jun 2011 07:34:53 +0000

"imon has a swelled belly along with acute pain. the doctor said if he had he had the spleen operation, he could get well. the operation will take 20,000 taka. imon's father has died. how is it possible for me to collect the money?" imon's mother imon, age 14 affected by e-beta thalassaemia bikrampur
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"shanto's father is a rickshaw puller and i work in a garment factory. this is how we run the family. if we spend whole days in hospital, how can we earn a survival?" anwara begum, shanto's mother shanto, age 10 affected by beta mejor thalassaemia kazipara, dhaka

Thu, 16 Jun 2011 07:34:53 +0000

"shanto's father is a rickshaw puller and i work in a garment factory. this is how we run the family. if we spend whole days in hospital, how can we earn a survival?" anwara begum, shanto's mother shanto, age 10 affected by beta mejor thalassaemia kazipara, dhaka
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"sajeeb has been suffering from fever with dysentery for many days. at first we relied on homoeopathy treatment, but his condition was deteriorating. then we had to rush to the local hospital. the doctor suggested taking him to dhaka. they said he is affected by a disease named thalassaemia or something and needs an operation immediately. twenty bags of blood are required. but i managed only four bags. from where will i get the rest?" shahidul islam, sajeeb's father sajeeb, age 8 affected by beta thalassaemia intermedia rajbari

Thu, 16 Jun 2011 07:34:53 +0000

"sajeeb has been suffering from fever with dysentery for many days. at first we relied on homoeopathy treatment, but his condition was deteriorating. then we had to rush to the local hospital. the doctor suggested taking him to dhaka. they said he is affected by a disease named thalassaemia or something and needs an operation immediately. twenty bags of blood are required. but i managed only four bags. from where will i get the rest?" shahidul islam, sajeeb's father sajeeb, age 8 affected by beta thalassaemia intermedia rajbari
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"bhaiya used to stay home most of the time. he felt uncomfortable to go outside. the fishes in the aquarium seemed to be his closest friends, with whom he passed his days." sajeeb, shyamal's younger brother shariful islam shyamal died of thalassaemia on february 26, 2008 at the age of 19

Thu, 16 Jun 2011 07:34:53 +0000

"bhaiya used to stay home most of the time. he felt uncomfortable to go outside. the fishes in the aquarium seemed to be his closest friends, with whom he passed his days." sajeeb, shyamal's younger brother shariful islam shyamal died of thalassaemia on february 26, 2008 at the age of 19
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Thu, 16 Jun 2011 07:34:53 +0000

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"this picture was taken when maisha was three-month old. we weren't aware at all that our sweetheart was carrying this fatal disease. we couldn't even imagine that she'll leave us so soon." mahbub alam, maisha's father rubaiyat binte alam maisha died of thalassaemia on february 28, 2009 at the age of 14

Thu, 16 Jun 2011 07:34:53 +0000

"this picture was taken when maisha was three-month old. we weren't aware at all that our sweetheart was carrying this fatal disease. we couldn't even imagine that she'll leave us so soon." mahbub alam, maisha's father rubaiyat binte alam maisha died of thalassaemia on february 28, 2009 at the age of 14
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Thu, 16 Jun 2011 07:34:53 +0000

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"i have been married for many years, but my husband still doesn't know it. i come to my father's home to get treatment. i am scared to tell him, what would happen if he divorces me?"

Thu, 16 Jun 2011 07:31:27 +0000

"i have been married for many years, but my husband still doesn't know it. i come to my father's home to get treatment. i am scared to tell him, what would happen if he divorces me?"
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"i don't like to go to hospitals. doctor apa always gives me injections. it hurts too much." fatema, age 9 affected by e-beta thalassaemia kazipara, dhaka

Thu, 16 Jun 2011 07:34:59 +0000

"i don't like to go to hospitals. doctor apa always gives me injections. it hurts too much." fatema, age 9 affected by e-beta thalassaemia kazipara, dhaka
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"most of the time i have to stay home. i can't go out and play in the field due to my illness." russell, age 13 affected by e-beta thalassaemia haluaghat, mymensingh

Thu, 16 Jun 2011 07:34:59 +0000

"most of the time i have to stay home. i can't go out and play in the field due to my illness." russell, age 13 affected by e-beta thalassaemia haluaghat, mymensingh
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"reeshad had expressed the depth of his pain in the lines of poetry. moments in surreality contains the words of his anguished soul." dr.golam rabbany,reeshad'sfather rabbany, founding president bangladesh thalassaemia society reeshad rabbany died of thalassaemia on december, 2005 at the age of 23

Thu, 16 Jun 2011 07:34:53 +0000

"reeshad had expressed the depth of his pain in the lines of poetry. moments in surreality contains the words of his anguished soul." dr.golam rabbany,reeshad'sfather rabbany, founding president bangladesh thalassaemia society reeshad rabbany died of thalassaemia on december, 2005 at the age of 23
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"this is the photo of his last birthday. he wanted a grand celebration and fun with friends and family. but it wasn't like that because of his sickness." syeda masuda hasan, ragib's mother syed manzurul rahim mutaqabbir ragib died of thalassaemia on november 24, 2006 at the age of 25

Thu, 16 Jun 2011 07:34:53 +0000

"this is the photo of his last birthday. he wanted a grand celebration and fun with friends and family. but it wasn't like that because of his sickness." syeda masuda hasan, ragib's mother syed manzurul rahim mutaqabbir ragib died of thalassaemia on november 24, 2006 at the age of 25
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"my two other children are quite okay, only shad is ill. thalassaemia was detected when he was only a four-month baby. none among our relatives has this disease. at first i couldn't bear his ailment, but now i am much stronger. i am fighting a battle round the clock to keep him well." shad's mother shad, age 8 affected by e-beta thalassaemia dhaka

Thu, 16 Jun 2011 07:34:53 +0000

"my two other children are quite okay, only shad is ill. thalassaemia was detected when he was only a four-month baby. none among our relatives has this disease. at first i couldn't bear his ailment, but now i am much stronger. i am fighting a battle round the clock to keep him well." shad's mother shad, age 8 affected by e-beta thalassaemia dhaka
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"we feel very sad when we see our child shanto is suffering because of us. we both are well but because of us he has to suffer his whole life. we pray no other parents do this mistake." rafiqul islam, shanto's father shanto, age 12 affected by e-beta thalassaemia goran, dhaka

Thu, 16 Jun 2011 07:34:53 +0000

"we feel very sad when we see our child shanto is suffering because of us. we both are well but because of us he has to suffer his whole life. we pray no other parents do this mistake." rafiqul islam, shanto's father shanto, age 12 affected by e-beta thalassaemia goran, dhaka
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"sometimes i get very angry when i see the number of patients affected by this disease increasing very rapidly throughout the country. but the government and media are paying no attention to this. only giving speeches and participating in seminars on thalassaemia day and forgetting about it the next day." shamsun nahar, shampurna's mother shampurna, age 2 affected by e-beta thalassaemia mohammadpur, dhaka

Thu, 16 Jun 2011 07:34:53 +0000

"sometimes i get very angry when i see the number of patients affected by this disease increasing very rapidly throughout the country. but the government and media are paying no attention to this. only giving speeches and participating in seminars on thalassaemia day and forgetting about it the next day." shamsun nahar, shampurna's mother shampurna, age 2 affected by e-beta thalassaemia mohammadpur, dhaka
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