"the doctor said two bags of blood is needed with 20 desferal injections each month. one bag of blood costs about 500 taka and also difficult to find. the desferal costs 250 taka. moreover, trips from chandpur to dhaka costs a lot of money. we are poor farmers, how will we get the money?" khuki, khorshed’s mother khorshed alam, age 9 affected by beta major thalassaemia chandpur